There is no way to establish the veracity of these posts, but when I looked at some of these pages I thought "Wow! I could have written these posts!"
They so precisely described my own terrible experiences with this drug.
So I posted too - just a fraction of what I'm dealing with because of fallout from the Prolia bombings I have endured. I am not editing here, but simply cutting and pasting what is already online.
Here are some of those Facebook Pages.
If you know of more please let me know!
1. Prolia side effects and complaints, effects secondaries et plaints. 2.3 k members.
https://www.facebook.com/groups/988541067970186/
"WELCOME! If you are looking for details of the many frightening side effects caused by Prolia - which many of you will have had your doctor deny - look at the latest Monograph published by the drug's manuacturer itself. This alarming document details most - but not ALL - of the drug's side effects, as well as warning users that the manufacturer does NOT know all the side effects and are still discovering them. That document is all the warning you will ever get from Amgen, so be sure to read it - and make sure your doctor reads it too! (Monograph is in the Files section and also here"
[Note: Here the author of this post gives a link to the Amgen Monograph for Prolia]
"Familiarize yourself too with the crucial information in the Files about rebound fractures and the damage Prolia does to bone remodelling/bone turnover. These files are from scientific medical sources and investigators...not unreliable websites and dodgy sources. These are medical researchers around the world, sounding the Prolia alarm!
Then! Join in the conversation - make friends - share your experiences - ask questions and give answers! There is a wealth of information here."
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2. Prolia (osteoporosis treatment) discussion group. 1.7 k members.
"This group is for the expressed purpose of discussing the osteoporosis treatment Prolia and your personal experiences with Prolia. Unless you are a physician, no member has the right to suggest whether another member should or should not take Prolia. This group is only for folks taking Prolia or considering taking Prolia. (NOT for ex Prolia Users)"
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3. Multiple Vertebral Fractures after Stopping Prolia 471 members
Group created May 13, 2018
"Group created to discuss on the international level the possible multiple fractures and rebound effect after stopping
Denosumab/Prolia."
"Scientific information:
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