Thursday, July 8, 2021

LOOKING FOR A SAFE OFF RAMP -- STILL LOOKS TOO DANGEROUS!

I have been scouring the internet for any information about how to get off Prolia safely.   I could find little online about this, but a solitary recent example is here:   

https://www.researchgate.net/publication/330483705_Stopping_Denosumab 

(Keep scrolling down for full text.)

Hopefully pdf file is at this link, and I have pasted the abstract below.

Here you will find a complex protocol involving other drugs.  I certainly would not have the ability to carry out this protocol on my own, and living with the pain of my bones already broken because of the medical mismanagement of Prolia would be afraid to try it in any event -- at least not without a lot of information about the experience of others who have tried it!  

Basically it purports to get you off Prolia safely and onto another osteoporosis drug, a bisphosphonate. But the last line: "Studies are urgently needed to to define the management of denosumab [Prolia] discontinuation" definitely rings true for me!  

Here is the bibliographic information:

And here is the above abstract a bit more legibly:   

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