The Hindu deity Shiva, often described as the Destroyer and Transformer, was considered necessary in order for new life to emerge.
https://en.wikipedia.org/wiki/Shiva
Now that Prolia and/or its medical mismanagement have pretty much destroyed my active and relatively pain-free body and life, I wonder how this will be transformed and what will emerge?
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Here's what my vertebral xrays look like. It's hard to read the xrays in this medium, but this picture gives a good idea!
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See Dr. Susan Brown's great article on Spices for Bones in Women's Health Network.
https://www.womenshealthnetwork.com/bone-health/best-spices-for-your-bone-health/
The spices she discusses are: Cinnamon, Cloves, Garlic, Ginger and Turmeric.
Well worth reading the article!
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The multiple vertebral fractures I suffered in connection with the medical mismanagement of the osteoporosis drug Prolia at the University of Chicago affects much more than my bones!
The pain I deal with each day makes it very hard -- and very painful -- to stay active!
But active I must be, because what's left of my health -- especially my cardiovascular health -- demand it!
I was saddened to learn of the recent passing of one of my favorite writers, the great Stephen Sondheim, on November 26, 2021.
(Use BACK ARROW at the top of this page to return to this blog.)
Dr. Gabe Mirkin, whose common-sense columns I've found helpful over the years, wrote this article, which I strongly suggest reading!
(Use BACK ARROW at the top of this page to return to this blog.)
Dr. Mirkin's recommendation: KEEP MOVING!
Here is the reason he gives:
"A key to prolonging your life and preventing disease is to keep on moving. Lying in bed for many hours each day is a certain way eventually to kill yourself. Each day that you spend not moving your muscles weakens your heart until eventually you can die of heart failure."
And keeping moving -- despite the pain from the fractures -- is what I'm trying my best to do!
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GENTLE rebounding on my Bellicon Rebounder seems to help me keep up my strength and keep from coming too debilitated.
Here is a link from Bellicon discussing some of the benefits.
https://www.bellicon.com/us_en/benefits/research
To copy!
https://www.bellicon.com/us_en/benefits/research
Hallowe'en used to be fun! Nothing is fun these days.
I deal with the pain and the helplessness and anger -- and the loneliness -- as best I can.
At least Mr. Jack O'Lantern understands!
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This is about macular degeneration, a condition affecting the retina, the part of the eye that converts what comes into the eye into signals the brain can recognize.
Elsewhere I've discussed some the treatments -- AREDS vitamins for the "dry" macular degeneration I have in one eye, and SHOTS IN THE EYE of a drug, Eylea, administered by a retinal specialist for the more advanced "wet" macular degeneration in the other. The latter I find quite scary!
This post is about the misinformation I received and what happened because of this!
The misinformation came from the retina doctor who told me that I had this eye condition because I was on Prolia!
This understandably left me with the impression that continuing on Prolia could leave me blind!
This in turn led me to believe that if I could cut back on Prolia I could still get some benefit to my bones, and also reduce the risk of blindness.
So I delayed a Prolia shot, whereupon three vertebrae -- two thoracic and one lumbar - -fractured!
The pain was unbelievable! I could hardly walk for several weeks and even today over a year later, I am still in a good deal of pain.
So you can imagine how I felt when I learned that it was NOT the PROLIA. but the osteoporosis itself that was the risk factor for macular degeneration!
I hope that the retina doctor who so casually told me that the macular degeneration was "because [I was] on Prolia" will rethink this advice for patients in the future.
The flood of pain and disability I endure to this day (I am writing this in 2022) should not destroy the active life of anyone else.
This will be something of a challenge because normally the retina doctors spend little or no time explaining anything and rarely if ever invite questions.
But when I asked this retina doctor why I had these eye condition requiring shots in the eye, the answer I received set off a series of actions that leave me disabled and in pain.
I discuss this in more detail in another post:
http://www.joansbackbonedisaster.com/2021/08/are-drugs-for-my-bones-harming-my-eyes.html
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If Pain were a chef I’d be eating fabulously;
If Pain were a musician I’d enjoy the music;
If Pain were a dog we’d take a walk each day;
If Pain were a comedian I’d be doubled up in laughter;
If Pain were a job I’d get a nice paycheck each week;
So many IFs — but there is only the big “BUT,”
Pain is just pain.
JDL 10/29/21