As if being lame from the sudden withdrawal of the osteoporosis drug Prolia discussed in other posts, I am learning more about how my eyesight may be at risk!
I have been diagnosed with a retinal disease, macular degeneration, in BOTH eyes. In one eye the less serious dry macular degeneration, treated nutritionally, and in the left eye, the more advanced wet macular degeneration, now being treated with injections by a retinal specialist.
A retinal specialist told me that the osteoporosis drug Prolia was the culprit here, while Amgen maintained the macular degeneration was more likely associated with osteoporosis itself.
This put me in mind of the verse from Rabbi Ben Ezra by Alexander Pope:
I found myself in the same situation!
I generally tend to distrust remarks from drug companies, but it turns out that it was, in fact, the inaccurate and misleading remark by the retinal specialist that unleashed this flood of events -- including three vertebral fractures -- leaving me with much pain and disability to this day!
I will report more as I learn more. Here here are some links to what I've posted earlier.
1) Prolia and Vision -- Must I Choose between Lame or Blind?
http://www.joansbackbonedisaster.com/2021/05/lame-and-blind-revisited-eyes-have-it.html
This is about the relationship between Prolia (and other osteoporosis drugs as well as osteoporosis itself) and macular degeneration.
2) Will I Have Vision or Bones in 2021.
http://www.joansbackbonedisaster.com/2020/03/will-i-have-any-vision-in-2020.html
This expands on the same frightening theme!
More as I learn more!
~~~~~
P.S. Note added August 2021: Please note that BONE specialists say the retinal situation is not because of the Prolia, and that the osteoporosis itself is responsible for the retinal issues.
And it turns out that the comment regarding Prolia made by the retinal specialist that unleashed this flood of pain and disability was totally inaccurate. But I suffer from this misinformation to this day. I'll keep reporting as I learn more!
###