This was one of those days when I felt tired, sad and even hopeless.
I tried to do some food prep today to make mealtimes easier, and I also did my exercises the physical therapist recommended to build my core, give me more stability and straighten the spinal curvature that has resulted from this Prolia disaster. But I see that I still have pretty tight limits on what I can do in a day -- a far cry from a few months ago!
At risk of overdramatizing, today I felt like the incredibly moving last line of Robert Falcon Scott's epic account of his final and ultimately fatal Antarctic expedition where he wrote: "It seems a pity, but I do not think I can write more." www.tinyurl.com/ScottsLastEntry:
I need to rest a lot but I also need to do my rehabilitation exercises. So I keep plugging away.
I am so grateful for friends who visit, and I try to keep that smile on my face, but today I miss my life so much. I want to be the visitor, not the visitee! I want to be the one who helps, not the helped.
I guess I'm grieving for my former self and wondering how much I can bring back.
And always that maddening thought -- I know I'm being repetitive here -- that all of this was so easily preventable. JUST A FEW WORDS in Amgen's patient and doctor information about the dangers of even a short DELAY in that six-month Prolia schedule, and all of this likely could have been avoided!
I need to take a nap now. This has been an exhausting day.
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| A Day of Pain |