A friend sent me a video about healing from compression fractures.
Here is a link to it. https://www.youtube.com/watch?v=ErvLU4ETuOo
It was produced by author Margaret Martin of Melioguide https://melioguide.com, a website devoted to osteoporosis, etc., but this was a video on YouTube.
For me the most remarkable part of the video came in the first few seconds with some background about a woman who had been on Prolia for some time, was taken off it by her doctor, and who, shortly thereafter, suffered painful vertebral compression fractures.
The rest of the video is an account of her long, painful and not very complete rehabilitation. This was very hard for me to watch emotionally, being in the same situation right now. But it's out there!
Also looking at a social media website called "Health Unlocked" (https://healthunlocked.com) where people tell personal stories about their medical experiences. Tons of comments of horrible experiences with Prolia that I wish I'd seen years ago!
POSTSCRIPT: I added my own comment there under my screen name "Viazoy" on September 3, 2018 which appears at: https://healthunlocked.com/bonehealth/posts/138831345/an-unnecessary-disaster-from-prolia.
And also see this in another section at Health Unlocked at: https://healthunlocked.com/american-bone-health/posts/139191460/getting-off-prolia?uid=a9561e0e-cc12-4d8f-a432-46940159b283&utm_campaign=american-bone-health&utm_medium=email&utm_source=notification&utm_term=new-daily+digest .
(Health Unlocked has two relevant bone "communities:" Bone Health and American Bone Health. Since the difference is not clear to me I post at both)
AND THERE'S MORE! Since I started sharing my experience, I've been hearing from friends my age (including two former high school classmates!) currently on Prolia who knew NOTHING about the hazards of even short delay. One was about to take a trip abroad and delay her shot! I hope she could benefit from my experience!
When will there be appropriate warnings for doctors and patients? Clearly I can't be the only voice to do this?
How many more older women will have a chunk of their remaining lives ripped out from under them because Amgen does not add these three little words (or words to this effect) to it's Prolia labeling: "... Or Brief Delay?" How many will suffer pain and deformity -- perhaps permanently -- because the medical facility administering their shots didn't properly warn them?