This website invites health care consumers to share their experiences. I'm not sure who vets the posts, but it may be useful to see what others are asking and experiencing. Again, anything here you are thinking of adopting for yourself should be checked with your own qualified health care provider.
Health Unlocked https://healthunlocked.com appears to originate in the UK. I cannot tell for sure, nor can I tell whether or how these posts are medically vetted. But it's an interesting site, and many posts ring true with my own unhappy experience with Prolia.
(It references being part of the National Osteoporosis Society which comes up in this Wikipedia article on the Royal Osteoporosis society:
https://en.wikipedia.org/wiki/Royal_Osteoporosis_Society#The_Duchess_of_Cornwall_Award
If this is not correct attribution I'll change it as soon as I can find the necessary information.)
It says it has an app but I can't find it. I'll keep looking!
Here's an article with information about Health Unlocked:
https://en.wikipedia.org/wiki/HealthUnlocked
I post there under the screen name: "Viazoy."
I have found interesting posts at two "communities"of Health Unlocked.
A. Bone Health https://healthunlocked.com/bonehealth
and
B. American Bone Health https://healthunlocked.com/american-bone-health
(It's not clear to me that the posts here are strictly divided according to whether they originate in the U.S. or the U.K. but both have interesting posts.)
Entering the word "Prolia" as a search item brings up a number of posts:
https://healthunlocked.com/search/posts?query=Prolia&page=1&community=all
And entering osteoporosis brings up more:
https://healthunlocked.com/search/posts?query=Osteoporosis&page=1&community=all
You can find some of my posts here under my screen name "Viazoy."
https://healthunlocked.com/bonehealth/posts/138831345/an-unnecessary-disaster-involving-prolia
While these websites have the verification issues common to social media, they still offer what may be useful accounts of what can result from Prolia that Amgen doesn't discuss much in its own presentations, and that I was never told when I was prescribed the drug.
Had I read these first, I probably would not have started on Prolia.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Here is a feed on the effects of stopping Prolia from Health Unlocked as of September 27, 2018.https://healthunlocked.com/bonehealth/posts/135922024/stopping-prolia
An interesting article published recently at the website Health Unlocked discusses the marketing of drugs for osteoporosis by scaring women into taking dangerous drugs.
Read the Health Unlocked discussion here:
https://healthunlocked.com/bonehealth/posts/139462412/scaring-women-into-taking-dangerous-drugs-something-to-think-about.?uid=a9561e0e-cc12-4d8f-a432-46940159b283&utm_campaign=bonehealth&utm_medium=email&utm_source=notification&utm_term=new-daily+digest
and more at:
https://healthunlocked.com/bonehealth/posts/139462412/scaring-women-into-taking-dangerous-drugs-something-to-think-about.?responses=139481455&utm_source=notification&utm_medium=email&utm_campaign=email_individual_response?uid=a9561e0e-cc12-4d8f-a432-46940159b283&
(These are basically from the same threads but the latter has more recent responses.)
You can see the discussed article (published in the Canadian Womens Health Network in 2005) here:
http://www.cwhn.ca/en/node/39499
I wish I had known these things years ago!
How I wish I had refused Prolia until it had been on the market for at least 5 years or preferably 10, so I could have had a fuller picture of the problems with this drug.
And would have I trusted the the DEXA results so much had I known more?
On the other hand, would I have broken bones had I waited? I'll never know.
But I may have let fear overcome reason, so here I am today!
