Tuesday, February 12, 2019

MY OSTEO TEAM: WHAT IS AMGEN'S ROLE HERE?

My Osteo Team at www.myosteoteam.com appears to reach out to people seeking basic information.  This website cites Amgen (the manufacturer of Prolia) as one of its sponsors.  So far I have not found much useful information here but they sent me this article:
https://www.myosteoteam.com/resources/osteoporosis-what-women-should-know.  

It listed a number of risk factors for fracture but I could find nothing specifically about "delay" in receiving a Prolia injection for people already using Amgen's product, Prolia

I have informed Amgen about my experience at their consumer phone number, 800-772-6436, in hopes that they would share it with others. I believe they should have specifically included the dangers of delay in receiving Prolia shots in their materials for consumers as well as doctors.    

Since www.myosteoteam.com  may have some sort of relationship with Amgen, it would seem that this website would be another good place to post this information.  I hope that my experience will result in more people knowing about this hazard of Prolia

You can visit My Osteo Team (and sign up for their communications) at:  https://www.myosteoteam.com/resources/getting-started-on-myosteoteam.

Here is my story that I posted on My Osteo Team where my screen name is Viazoy:

https://www.myosteoteam.com/users/5bf60f8a65df61084009721b/story


I appreciate having this opportunity to share my experience with others whom I hope it will help.  Based on my own experience I would say that 1) even a short delay in receiving a Prolia shot could be disastrous and 2) it may be hard or even impossible to get off Prolia without severe consequences!  This is why I feel like a fish trapped in a gill net!